Monday, January 16, 2006

Home, and then gone again

Joe came home from the hospital Friday night. I braved high winds, rain, and tornado watches to go get him at 10pm. LOL He was sick in the car several times because he had dialysis right before we left. The dialysis nurse up in Fernandina was really nice, the regular nurse was ditzy. So we went to the first dialysis session at a clinic on Saturday. I wasn't able to go and sit with him, even though I'd been expecting to. So I waited for 4 hours while they did it. I watched several people go in and out, some in wheelchairs, one on a gurney (sp?), all of them old and sick looking. It was depressing. I knocked on the treatment room door to check on him after 4 hours and I was told his blood pressure dropped really low, 80/something and that he had to wait until it came back up to leave. I walked back to the waiting room crying out of frustration and scared for him. The nurse didn't even change his bandage around his catheter (said it looked "fine") and today when I looked at it, it was bloody and gross looking. That bitch will be hearing from me about this. I met with the nurse practioner for a minute (she said she needed to get home, blah blah blah) and gave me a little information, but still not nearly what we need to know. I don't know when these people intend to give us the education we need. That's another thing we need to talk about. I may just talk to the doctor because I'm tired of dealing with asshole nurses that aren't doing their jobs. He vomited several times in the car again and had bad cramps (2 signs they may have taken too much fluid off). When we got home he was exhausted and went to bed shortly after that. Before he went to bed I asked him if he took a particular medicine he's supposed to be on. He said no, that it gives him muscle cramps and he didn't want to take it. I asked him to take it since the NP said it would be good for him to have it, and he did take the medicine. He spent the rest of the night writhing in pain from the horrible muscle cramps. I cried again because I felt so bad for asking him to take it.

Today I dropped him off at the airport for his flight to Ohio. I'm so scared that he'll get really sick while he's there and I won't be there to help him. He'll be gone for 2 weeks, and I know I'm going to be worried every minute of it. I just recently (like yesterday) noticed a sore-type spot on one of his toes that has me worried. There was some pus coming out of it and the skin around it is very thick and several layers are peeling majorly. I told Joe to tell the nurse about it at the dialysis clinic in Ohio and have someone take a look at it. With him being diabetic plus now this kidney stuff, you can't be too careful.

I'm hoping for the next 2 weeks he watches what he eats and drinks and doesn't come back worse off. I just have this horrible feeling that when he comes home he's going to look like the walking dead or something. I wish I could be there to make sure he's being taken care of (by both the medical staff and by himself).

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