Told them we need to work on the communication. They never told him he might have to be unconscious for the surgery. They are taking forever to get back to us about when dialysis starts. They are not telling us if his meds need to be changed. They are still working on getting him set up with the insurance - I guess getting the dialysis pre-approved. He has to be tested for hepatitis tomorrow so they know what machine to put him on. I'm not sure why that matters exactly, but I guess it's good to know anyway. They are expecting dialysis to start Thursday or Friday, and supposedly we will have a sit down with social worker and dietician to work on plans and explain everything. He is expecting to go to his first session and see how it goes, but regardless fly up to Canton, OH for work training 2 days later. I think it's ridiculous and that he should reschedule the training for a few months from now, but he's made up his mind he's going. I'm worried how his work is going to adapt to this. I know by law they have to try to accomodate, but there's always a way around it. Right now it looks like he'll be in dialysis 3 days a week either early in the morning or starting around 3pm. Neither of which are good if you are trying to work during the day. I hope his job doesn't screw him over.
I mentioned previously that all my plans are changing. I want to elaborate on that. All along, my dream was to buy a house on some acreage, raise some goats and do the whole green-living thing, and make babies and live happily ever after. I'm afraid that's not going to happen anymore. I need to work on finding a job/career that can get me making pretty good money quickly in case he needs to stop working. We need to get out of this hell-hole we call a rental home and into a nice, cleaner (no mildew) bigger place of our own. We need to bulk up our savings. I don't even know if we can try to get pregnant with all this. There's no way I'm going to ask him to submit to more needle sticks just to try to conceive, and actually I don't know if it's safe with the meds he's going to be on. On the other hand, I don't know if we could get approved to adopt - something we really want to do - with his condition now. It's very frustrating. I don't know if he's feeling the same since he doesn't seem upset or worried. I don't want to talk about this with him right now because I don't want to stress him unnecessarily. ((Sigh)) That's all for now. I'll update more when I hear something new.
Tuesday, January 10, 2006
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